So today was the *longest* appointment ever..I think..lol. Thankfully my wonderful mother-in-law came to help since all four kids got to experience Scottish Rite today. After much waiting Dr. Naprassi came in to discuss what they think we should do next for Brylea. It was determined that so far nothing is helping her. Another Dr. from rheumatoid was there as well. She dealt mostly with adult rheumatoid and told me that since the biopsy showed that the nodules were rheumatoid related that Brylea is extremely rare. Therefore, they are wanting to get more aggressive with her arthritis. Along with her Naproxen and weekly Methotrexate injection we will also be adding Enbrel to the mix. Enbrel will be a twice a week injection since Brylea is so young. I am skeptical at this news. I am hoping with the Enbrel injection along with the Methotrexate injection that she will feel instant pain relief. I was really hoping to get her off of the Methotrexate since it is such a powerful drug but no such luck.
Brylea also had developed a rash that almost resembles excema. So, the next step there is to see a Dermatologist to see if maybe it could be excema or another disease related symptom. The rash has them somewhat baffled at this point as well.
We go back in July to see if the injection cocktails are working. However, they were really taken back by her joint inflammation especially in her wrists. If the newest regimen does not work then they will go to joint injections as well. I am praying that we do not have to add any more injections to my almost 3 year old's body. I want her to be a normal child (as much as she can be).
Pray for my husband as well. Brylea is his little girl. They are very close and this breaks his heart. He sees children playing sports or even games at AWANA and he wants so much for Brylea to be able to join them. I take the motherly approach and know that Brylea is going to accomplish whatever she sets her stubborn mind to. I just wish my husband would join that same bandwagon. Thank you for those that continue to pray and ask about her.
Philippians 4:6-7 - Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
