Ok...I feel like such a bad mom...really...or maybe just a highly unorganized mom disguised as one that has it together. I am here to break free and admit I so do not have it together. However, new year means a fresh start. Starting with this blog. I am determined to keep up with this. That way I can get Brylea's story and latest updates to those that ask (which we LOVE the asking and the PRAYERS)!
We went to the Dr. in December. They did not like the fact that after being on a cocktail mix of Methotrexate and Enbrel that she was still limited in her joint mobility. The swelling has never gone down in her hands and feet. However, her overall mobility is great. We have noticed that if we skipped a dose of her meds you could immediately see a difference. Plus, living in Texas and the weather being crazy whenever a cold snap hit it hit Brylea the most. She had an MRI and X-rays on December 29th. They also re-tested for any other underlying autoimmune diseases since her arthritis is so rare. We went back on January 9th for the results.
What they found is the same. The MRI showed swelling/inflammation around the wrist. However, her blood work came back normal. They still did not like the results from the Enbrel so they switched her to Humira. The good is less injections. The bad is that the Humira is a physically painful shot. If the Humira does not do the trick then Brylea will be the youngest patient to recieve the infusion medicine Orencia. I am not a big fan of Plan C. Therefore, I have an appt a week from today for a homeopathic Dr. to look at Brylea and see what his plan would be. I do not think it could do any worse and I am very optimistic.
Now, enough with the medical update. I am also writing this post because in May there is a big Arthritis Walk. I am so excited about this!! As many of you know (and helped TREMENDOUSLY) I had 13 days to raise $1500 to be able to go to Great Wolf Lodge in September for the JA conference. This time, I have til May to raise the money. I already had my first fundraiser this month and in the two weeks that I had it going I raised$133! This is a good start! For those that were not able to participate there will be plenty of more oppurtunities! On March 3rd, there will be a Skate-a-thon in Mesquite from 12-5. It will be $5/person and part of the proceeds go towards Brylea. I just need 60 skaters (minimum). However, I will be getting flyers to pass out at my places of employment and possibly my children's school. Also in March I am going to start collecting items for a garage sale at my house. I am hoping this will be the big ticket item to help me get to my goal! So, start your Spring Cleaning and remember Brylea before throwing anything out!!!
Ok! I think I am done for now! I will update more on the fundraisers and on Brylea's progress. We go back to Scottish Rite March 5th. I am hoping that whatever the homeopathic Dr. suggests will have some effect on Brylea so that we can steer clear of the Orencia.
