Well, we have come to our one year anniversary of finding out about Brylea. I feel in a way we have come a LONG way from a 1 yr old that limps and has "chunky feet" to a 3 yr who has been diagnosed with rhuematoid arthritis but I am still learning terms, medicines, reactions, and the list goes on and on. Luckily I am finding other moms who have lead me in the right direction and to let me know we are not alone in this.
We had our follow up today. There is good news. Everyone is seeing improvement with her meds. However, they think something else may be going on with Brylea they just do not know what specifically. She definitely has RA but she has other symptoms no one has ever seen and only read about. For now they are happy with her progress. Her fingers are starting to curl a bit. So, she will be wearing a soft splint at night so that when her wrists are resting they do not naturally curl up like an arthritis patient but instead rest in a more level position with her arm. I would take a splint at night over more meds anyday!
In all of this Brylea has shown through. She now runs, jumps, and is a more active child. As she was growing she was very particular about not holding her hand while she walked. A few weeks ago at church she actually wanted to hold my and Nathan's hand. It was awesome! We take those small moments and rejoice that God is healing her and has a special
Plan for her. And in that I know God has not left me or Brylea. In the words of a leader in our church Sunday "He is molding our particular path" to glorify Him more!
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