Tuesday, January 15, 2013

Ampin' It Up

     So we went back to Scottish Rite to follow-up on how Humira is doing in treating Brylea's arthritis and to also get the results from her MRI and CT scan.  The good news is that I have noticed with the rain and cold Brylea is doing REMARKABLE.  The stiffness is pretty much non-existent but her swelling is still there.  What the MRI showed is that the inflammation/swelling has gone down since her last MRI.  However, the bone damage is still pretty severe and has confirmed how aggressive the arthritis is that Brylea has.  The CT scan showed that the nodules in her upper respiratory has pretty much resolved and the lower respiratory nodules are shrinking.
      However, the Dr. still sees the arthritis and feels it whenever she is doing her work-up on Brylea and doesn't think the Humira is fighting it as fast and as much as she wants it to.  Especially since the bone damage is pretty severe and it is affecting the body parts that Brylea is going to need for the rest of her life.  You can not fix bone damage already done but it can repair a little as her body grows.  Therefore, instead of doing Humira every other week she wants it done every week.  We go back in March to see if that is working any.  She is hopeful regarding what she sees but it is the MRI that worries all of us a little. 
      I have to wait for the Pulimonologist to call me with their official word on what they see in the CT scan but I feel like it will be good news.  Other than that we are going to keep doing what we are doing and I feel like Humira is going to be our miracle drug!

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