These were not the words I expected to hear when asking Brylea how her day was. Usually she gives me the run down of who got in trouble, who got "treasure", or already asking what's for snack. But now my 5 year old is becoming more aware of her "ar-thur-I-tis" (her pronouniciation). This was a new nodule and appeared on her knee cap. As a mom, I freaked! Afterall, her follow up was in a few days. I KNEW we would sail through her appointment with flying colors. Humira was our miracle drug. This would mean infusions, stronger drugs, and more unknowns.
Then, today arrives. The appointment day. Bry loves Scottish Rite days. She calls it her "crayon doctor." This is when Gammy comes and brings her a surprise plus the goodies she gets from the hospital itself. It means trains and fish tanks galore. She loves this place. On the way to take the older two to school I was listening on the radio about Kidd's Kids. Small testimonies of what these parents face had me in tears. One mom was saying how they were saving for Disney but was afraid by the time they could go she didnt know if her daughter would still have sight. That hit me hard. Here I was fearing about today's appointment when there are parents fearing everyday over the health of their children. I felt so selfish.
We get to the appointment and not only was she still showing improvement but that new and mysterious nodule was gone!!! Praise the Lord! The only thing the Dr wanted was an MRI to make sure that what we are seeing on the outside matches what is going on in the joint itself. This is scheduled for December 10th.
Other than that we go back in February and just to continue to pray for remission!
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